I am writing you today in hopes that you will take a few minutes and read about 4-year old Trey Lane...
Michael Trey Lane is the youngest of three brothers whose spirit and courage are truly second-to-none. I have had the privilege to work with Trey’s father (Mike) who is a sergeant with the Tempe Police Department and watch as he and his wife Cami, a Southwest Airlines flight attendant, have struggled to find answers for their youngest son’s debilitating disease. Even after hundreds of visits to numerous doctors across the country, countless hospital stays, enduring test after test, all in an effort to save Trey’s life they have remained steadfast in providing a home filled with love for their children Drake, Broc, and Trey. And while this struggle continues today you would be hard-pressed to find a more positive and resilient family than the Lane’s.
To give you a glimpse of what they have endured, a year ago Trey was misdiagnosed with MPS VI ultimately resulting in unnecessary and expensive intrusive treatments for Trey. He has since been correctly diagnosed with MPS IV-A; Maroteaux-Lamy syndrome, which is an inherited disorder. Because people with MPS IV-A are deficient in a specific enzyme, the disease affects many organs of their body including the skin, heart, airways, and skeleton. An infusion therapy is in clinical trials in Birmingham, England. If these initial trials bring promising results, trial phases II/III will be brought to the United States within the next few years. Hopefully Trey will be lucky enough to be chosen for these trials. At this time there is no cure for this disease and it is considered life-threatening.
To help Trey in fighting his battle a fundraising event is being held Saturday, February 27th at the Tempe Mission Palms Hotel in downtown Tempe, AZ. All proceeds raised at this event will go to the family to help offset the tremendous medical bills incurred and to improve Trey’s quality of life. It is going to be a fun-filled evening with entertainment, food, cocktails, a silent auction, raffles, and more. If you are in a position to provide a silent auction item, purchase tickets to the event, host a corporate table, or want to discuss a sponsorship, PLEASE let me know! All items, small or large, will be graciously accepted. We are hoping to have gift certificates, gift baskets, sports tickets, spa packages, vacations, movie passes, airline passes, liquor, furniture, shopping sprees, a vehicle, etc…the sky is the limit, and your creativity is welcome. This event is not sponsored by nor is it an official event of the Tempe Police Department, rather a few friends doing what we can for this precious 4 year-old boy.
To learn more about the event benefiting Trey Lane including sponsorship information, how to donate a silent or live auction item, and to purchase tickets for the event please visit: www.treystreasurechestforhope.org
My contact information is below, I hope to hear from you soon. Thank you in advance for any help you can provide.
Dan Masters
480-216-0242
arizdan@cox.net
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