Our friends Darla (mom), Justin and Kianna (brother and sister with MPS IV) have gotten "on board" with fundraising and obtained permission to set up a concession stand at the fields where Trey plays t-ball. Yesterday after Trey's last game we visited Justin and Kianna's booth and bought a few snacks to hold us over to the end of Drake and Broc's soccer game. Trey is still very shy but was happy to help by purchasing candy, pop and gum...heck, who wouldn't? haha! The flyer that Justin passed out to inform people about why they were there and what they were raising money for listed 10 symptoms associated with MPS IV. After Gigi read the kids' flyer she said she almost started crying not realizing that severe pain in the back and joints are symptoms of Trey's devastating disorder. Gigi's comment made me wonder how strong Trey is and question his pain...does he have any? Does he have pain but doesn't express it because he doesn't know better and just lives with it? Is it worse than we realize? With Justin and Kianna being older and able to relate their pain to their mom, they are also expressing to me signs I should be looking out for in Trey.
The best of luck to you guys...we hope you raise tons and tons of money!
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