How Lucky!

Infusion #3 (or really #2 as far as the study goes, since the first infusion was called “zero”) was another good day spent in Oakland, CA. Our day was full of surprises, luck and of course many blessings...again!

We heard that there was an earthquake at 5:30 this morning and that they are expecting another one at 9pm tonight...so happy to report that we missed both, coming and going.
*Trey sleeping in the back seat of the limo

So, I thought we were being picked up in a town car but instead a stretch limo arrived at our home at 4:30 this morning. I think Trey was too tired to appreciate the limo but I sure was loving the luxury and comfort, not to mention the fact that all I had to do for the next half hour was to relax.

As Trey and I are walking to our gate this morning, a Southwest pilot starts up a conversation with me. We both were headed to get breakfast and to my surprise Mr. Dave offered to buy Trey what ever he wanted for breakfast...yup, you guessed it, another Cinnabon! And as our luck would continue (so early in our long day), Mr. Dave was our pilot heading up to Oakland and offered to put Trey's stroller in the cockpit so that we wouldn't have to wait for it in the jet way upon arrival.

During this mornings infusion, Nurse Jac allowed Trey to administer his own med’s. I love Jac because time after time she has allowed Trey to be a part of his medical needs. And of course Trey loves to be given the responsibility and glows at the opportunity!

*Bekah and her prince, Trey
Trey had so many visitors today, and was very popular with the girls; Miss Bekah and Evie to name the two who are his age. Evie is the little girl whom Trey’s blog helped diagnose. After 2 1/2 years, we finally had the pleasure of meeting Evie's family; her mom and dad (Erin and Mike) and her little sister Sadie. Erin and I planned it that her and Evie would be in Oakland every Thursday to join Trey and I for the next year (they are flying in from Orange County) to have the kids receive infusions together. Justin, Kianna, Evie, Sadie, Bekah and Mrs. Donna (an adult whom also has MPS IV) were all at Trey's bedside at one point in the day. I'm not sure Trey understood but he had 6 MPS friends to support him through today's infusion. I was so happy to see everyone and have to admit I may have allowed myself to get a glimpse into Trey's future as Evie and Bekah stood by his side-haha!

*After all this time, Trey and Evie meet
As if that wasn't enough in the way of visits, Trey likes his guy friends so up to the x-ray techs office to hunt down Nick and Randy we went. Trey asked Nick if he could get some more football cards and was anxious to show Mr. Randy the picture he took for him on his way to the hospital this morning. Mr. Randy wears a Raiders lanyard around his neck and Trey will not let him adorn such a team's names around his neck without razzing him about it.
*Thumbs down as we pass the Raider's Field
Yea, we ran into Trey's friend at the airport as expected, only Trey was sleeping. Mr. Chris sat next to us on the flight. When Trey woke up at the very end of our flight he was pleasantly surprised to see his friend sitting in our row. Mr. Chris was happy to let Trey use his i-pod to play "Tickle Tomcat" and I believe just as happy to see Trey as Trey was to see him.
*Trey playing with Mr. Chris' I-phone
Having a driver take us home rounded out our nice day. Although very tired, I am exceedingly happy to be able to echo last week's report that Trey is a super patient and that all is well!