* The age for Dependant coverage is 26- Now our friend Taylor (MPS VI) can go back on his parents insurance for a few more years, saving them a ton of money. It also has eliminated the need for our MPS children to try to carry a full load in college (which is extremely difficult between their medical commitments and for some, their physical handicaps) in order to remain on their parents insurance.
* No pre-existing condition exclusions for children-this means that no child will be denied insurance coverage sue to illness or disease. need I say more? Amen!
*No annual or lifetime limits on "essential benefits"-Prescription drugs are considered an "essential benefit," so we will no longer have coverage limitations on our Enzyme Replacement Therapies-for us this means our prayers have been answered!!! The 3/4 of a million dollars that was pumped into Trey's little body due to a misdiagnoses in a monetary sense is no longer a concern. Imagine "waisting" Three quarters of a million of your child's 2.5 million lifetime maximum for nothing!!! We can begin or new ERT (as soon as it come to the US) without the worry of having to stop it in three years because Trey's insurance limit had been maxed out.
This is all such promising news for us MPS families and our children!
Trey at St. Joe's receiving an Infusion Therapy - Feb 2008
No comments:
Post a Comment