What a busy Friday…two doctor appointments, a needle flush to Trey’s port and a GH shot… a lot for a little guy to take in one day but as usual, Trey was mommy’s “Super Trooper”!
Trey’s first appointment at 8:30am was his yearly eye check up Dr. Salevitz. Trey did so well with everything, even with those uncomfortable eye drops…he’s my hero! Dr. Salevitz gave me the run down on what he was looking for with Trey in a normal annual visit and in a child with a storage disease; misalignment, far sided, lazy eye, cross eyed, normal blood vessels and optic atrophy…enough to scare any parent.
After the initial eye test and the time for the eye drops to fully dilate Trey’s pupils so that Dr. Salevitz could get a good look behind Trey’s eye’s, we are pleased to report that everything looks really good. Trey’s prescription is 20/30 in both eyes, he has no glare and although he still has the slight clouding of the cornea, we have nothing to be alarmed with. Our instructions were to keep Trey happy and to make an appointment in a year from now…my kind of way to start the day.
Trey's favorite part of the appointment was looking into the machine he called "the motorcycle"...too cute!
After a few errands we were off to Dr. Fucci’s office for the follow up appointment four months after the insertion of Trey’s tubes. For the first time Trey actually decided that he would take the hearing test for Dr. Fucci’s staff…the kids got a mind of his own. With an excellent test score and a visual look into Trey’s ears that proved “perfection”, we were sent home with all good news (and as you can imagine a huge smile on this mom’s face).
We go into every appointment with apprehension…the “what if” is so hard but I’d have to say the waiting is the hardest. Never knowing what one appointment from the next will bring, we live for today…and today was a very good day!
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