Emotional Day

October 15, 2014

 

In October 1988, President Ronald Reagan Proclaimed October as National Pregnancy and Infant Loss Awareness Month.

 

There have been numerous days since Treys birth that I have felt extremely blessed to have him in my life but I'd have to say that today ranks right up there at the top.

 

A little over nine years ago, my dear friend Gia experienced the birth and death of her new born, Sable Marie.  Almost 9 1/2 years ago to the day, I experienced the birth of my angel, Michael Trey.  Gia and I went through the pure excitement and joy of pregnancy together.  Needless to say, Trey is still with us whereas Gia and Baxter had to say goodbye to their angel Sable almost as soon as they welcomed her into this world. 

Gia holding Trey just weeks before Sable would be born

 

Today it was with mixed emotions, that I was honored to be personally asked to join Gia and her family as they had the ribbon cutting ceremony for "Sableswings Comfort Room".  A room for grieving parents to cope and pray in.  A room in the maternity ward of the hospital that both Trey and Sable were born.  This room goes to show that from the tragedy of death comes the birth of Gods larger plan.

 

I brought the boys with me as they not only witnessed the ribbon cutting ceremony but also the tears that I could not hold back (as hard as I tried).  I tried to explain to them, in 14-9 year old language, where my emotions were stemming from.  I told them that today was a reminder that WE ARE THE LUCKY ONES! I can't begin to count how many times I have felt the "elephant in the room", the "target on my back", the looks, the stares, the whispers of people feeling sorry.  What they don't understand is that I AM LUCKY! I got to walk out of that hospital 9 1/2 years ago with my angel in hands. Some parents aren't so fortunate and no matter what the outcome is for Trey, he is here, he is ours!  We get to experience a smile and personality that lights up every single room he walks into!  We get to be reminded of the little things.  We know not to take things for granted.  We cherish because we have witnessed the alternative.

In Loving Memory and Rememberance of your Loss~xoxo, Cami

 

 





Starting Up Again!!!

Hi everyone, Hi "Trey's Treasures"! I'm SUPER excited to say I'm STARTING UP AGAIN! I'm going to try my very best to update Treys blog on a more constant basis. I believe my last post was more than 2-years ago and as you can imagine so much has happened in that time. Instead of trying to capture the past in one extremely long blog entry I will make this one short-n-sweet then continue to go back in time, until we are up to date. For today, I'd just like everyone to know that Trey is now receiving his infusions in ARIZONA!!! For the past three years we were a part of an amazing group of families that together, through a clinical trial, received FDA APPROVAL of the enzyme replacement therapy for MPS IV-A!!! The approval happened this past Valentine's Day and already Trey is the "talk of the town"! ***See our latest at "raising awareness" tonight on News Channel 12 at 6:00pm*** All our love, to those who continue to support Trey on his journey and those we have met along the way... his story continues.

Disclaimer: Please excuse the "hiccups" as I try to figure out whose who as far as emails goes and which ones are still current.