Don't Jump, OK?

So I'm sure you all remember the story a few weeks back about the Jet Blue flight attendant that decided that he had had enough, took a beer, popped the emergency slide and ditched the airplane. I had no idea that Trey even picked up on the news reports or us talking about the incident but obviously he did because he sees me in my uniform realizing I'm on my way to work and says, "Mom, please don't jump out of the plane, OK?"

Special Education Services

I had a meeting this week with the Special Education teachers to review the results from the occupational therapy (OT) evaluation that was given to Trey over the past few week's. I was so proud to hear that Trey does not need OT services at this time. Trey was tested in a one on one setting with the therapist and was also observed in multiple classroom settings. His scores on the two tests (Berry Developmental Test of Visual Motor Integration and the Peabody Developmental Motor Scales) were age appropriate. The concerns I had about Trey at home don't seem to be issues for Trey at school, hummm...imagine that. I questioned all the tests and the results knowing that Trey can't or at least as I'm coming to find out "acts" like he cant accomplish at home. According to the therapist and her observations, Trey CAN and does most everything that was asked of him at an "on grade level" level. I expressed that Trey's disorder is progressive so that the school would make a note that whenever I felt (or if they observed) Trey falling behind in his OT skills that at anytime we could revisit this section of Trey's services.
I noticed from the very beginning of Trey diagnosis that there was a marked difference in Trey's hands compared with every other MPS IVA child I had seen in pictures. 100% of all the other MPS IVA children have long, skinny fingers and narrow hands. However, Trey's are short, small and even have a slight "clawing" to them, meaning he doesn't have the ability to fully extended his fingers. Because of this difference I had always thought Trey would need and absolutely qualify for OT...to my surprise and excitement, this doesn't seem to be the issue at this time.

Written for Trey

How could I have forgotten to add this entry to Trey's blog...it is so SPECIAL! At the end of last school year (which is June for us in AZ) my nephew, Dante's 6th grade class was given an assignment to write a book with the reward of it being "published" in the end. Dante decided to write his book about Trey. The message of the book was about Trey and his beautiful personality and how kids should accept him for what a cool kid he is on the inside despite his outward size. Although Trey doesn't understand just what the book is all about, he was so excited to see the hard sided, bound book with his name across the front cover. Dante ordered an extra copy for Trey and since we've had it Trey has made this book his book of choice as the one book we read before bedtime. Thank you my sweet nephew for taking the time, making the effort and having Trey be the subject of your class project!

I asked God

So often I pray for my family and as you can all imagine I pray for a miracle for Trey, for a cure and at the least a treatment.
So often I find myself questioning my prayers, the way I ask them and what I ask to come of them.
So often I question God and how He can allow this to happen to my child, to children in general.
And today, like so often I received an email like this from my true blessing of a friend, Alexis. Within the email were these powerful words...and so often my questions are answered.

I asked God to make my handicapped child whole.
God said, No.
His spirit is whole, his body is only temporary.
I asked God to give me happiness..
God said, No.
I give you blessings; Happiness is up to you.

May God's light shine upon you too~

Parker's Party

Drake’s good buddy Parker just celebrated his 10th birthday. Parker is like a second (or should I say fourth) son to me and evidently another brother to Trey. Trey loves Parker and even asks for me to style his hair like Parkers in the “faux hawk” style. As a tribute to what a good “big brother” Parker is to Trey he not only invited Drake and Broc to his birthday party, he made it a point to personally invite Trey too. Trey had such a great time swimming with the big guys and for the first time taking part in his big brothers activities. I believe Parker likes Trey as much a Trey cares for Parker…it’s so awesome to see how Trey touches the lives of so many of those around him.

Don't Worry, Be Happy!

As many of you know by now I have finally joined Face book…two days before my birthday to be exact. Well, to my surprise I was bombarded with many, many happy birthday wishes from friends I hadn’t heard from in years. I had no idea how Face book worked and that by me adding my birth date to my profile information, it automatically alerted my “friends list” of my birthday…one of the best gifts this ol’ lady can receive is the “love” of friends.
But I think what surprised me the most on my birthday was the birthday wish Broc wrote in a very special card the boys handmade for me. Broc told me he wrote down a song for me in my card. My first thought was, how cute, he recited the entire Happy Birthday song to me in this card I was about to open. BUT, instead of “Happy Birthday to You”…it was the word’s to the song “Don’t Worry, Be Happy”. I held back the tears and thanked all three of the boys (whom by the way stood one inch from my face as I opened the card with the toothy-ist of all grins in anticipation of my reaction to what each of them wrote to me).

Ok, Ok, so I tried to hold back the tears but the card so just so cute, they were just so cute, how could I help it? Truly what made me cry was the fact that Broc choose these words for me. My first reaction was that I have placed too much of my anxiety and fears of Trey’s situation onto them. Secondly, that I have to remember at ALL times that they are listening (my little sponges) and lastly that as much as a challenge Broc is for me at times, he is so very in-tune to my feelings…how lucky and loved am I! Thank you God, I have been so blessed by these three little boys and that is the very, very best birthday gift of all.
Compassion can’t be taught…it is learned~